$29.95
Availability: 0 left in stock

"The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn't." These poignant words were spoken by Charlotte, a mother and primary caregiver of...

  • Name : Becoming an Expert Caregiver: How Structural Flaws Shape Autism Carework and Community
  • Vendor : Rutgers University Press
  • Type : Books
  • Manufacturing : 2024 / 12 / 20
  • Barcode : 9781978831902

Click here to be notified by email when this product becomes available.

Categories:

Guaranteed safe checkout:

apple paygoogle paymasterpaypalshopify payvisa
Becoming an Expert Caregiver: How Structural Flaws Shape Autism Carework and Community
"The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn't." These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework - meeting dependents' financial, emotional, and physical needs - that transcends the walls of one's private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in "the rest of the world."

Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place.



Author: Cara A. Chiaraluce
Binding Type: Paperback
Publisher: Rutgers University Press
Published: 12/13/2024
Series: Carework in a Changing World
Pages: 176
Weight: 1lbs
ISBN: 9781978831902

About the Author
Cara A. Chiaraluce is Senior Lecturer in the Department of Sociology at Santa Clara University. She conducts research in the fields of carework, gender and family, health and disability.

Ezra's Archive Does not ship outside of the United States

Delivery Options:

1. Economy: 

Estimated Delivery Time - 5 to 8 Business Days

Shipping Cost - $4.15

2. USPS Priority:

Estimated Delivery Time - 1 to 3 Business Days 

Shipping Cost - $8.85

3. Free Economy Shipping: Only Applicable to Orders over $60

Returns and Refunds: 

Purchased items are not eligible to be returned. However, a refund or item replacement may be granted should an item be damaged or misplaced during shipping. To make a refund or replacement claim please contact us via email at Ezra'sArchive@outlook.com